CHARGE Syndrome Awareness Day unites the global community of CHARGE groups and specialist organisations that advocate for people living with CHARGE syndrome.
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CHARGE Syndrome Awareness Day unites the global community of CHARGE groups and specialist organisations that advocate for people living with CHARGE syndrome.
Depending on the legal regulations in each country, CHARGE groups vary in their structure and their objectives. Most are formally registered charities, others are informal parent support groups, the majority are run by volunteers living with CHARGE syndrome striving to improve quality of life for families and individuals.
The specialist organisations listed provide a range of supports and services to people with CHARGE syndrome. They have experience working with CHARGE syndrome and aim to promote evidence-based best practices in their work.